PBC Awareness: A Revolutionary Force in PBC Education & Advocacy
PBC Awareness, NFP is emerging as a transformative organization dedicated to serving those affected by Primary Biliary Cholangitis (PBC) in the United States. The National Institutes of Health reports that there’s an estimated 50,000-100,000 people in the United States that have Primary Biliary Cholangitis (PBC).
We aim to address the growing challenges and unmet needs within the PBC community, filling a critical void by providing specialized support, education, and advocacy for U.S. patients.
About Us
OUR VISION
PBC Awareness, NFP will be a beacon of hope and an information resource for the U.S. PBC community, fostering awareness and improved quality of life through experience, compassion and knowledge/education.
MISSION
PBC Awareness, NFP's mission is to improve the lives of those affected by PBC through comprehensive support, education, and advocacy specific to the US.
- improve overall patient experience and quality of life
- develop a comprehensive PBC toolkit for patients as well as their families, support networks, and healthcare professionals
- promote and implement change in the approach to PBC care, treatment, education, resources and support
- share successful applications, programs and projects with other PBC and liver patient support advocacy groups and individuals worldwide.
- improve overall patient experience and quality of life
- develop a comprehensive PBC toolkit for patients as well as their families, support networks, and healthcare professionals
- promote and implement change in the approach to PBC care, treatment, education, resources and support
- share successful applications, programs and projects with other PBC and liver patient support advocacy groups and individuals worldwide.
Liver
Autoimmune Disease
Surgery
Healthcare
Our Team
Our Board Of Directors & Staff
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